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Cystic Fibrosis Foundation

In: Business and Management

Submitted By Rickiesehgal
Words 766
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Cystic Fibrosis Foundation
Why ha CFF bee successful to date?
Bob was successful because he created a organization which was structured like a business. It had all the components and disciplines that you would find in any business. He remains in touch with the business and found way to communicate the vision of the business to all the employees. He found ne an innovative source of revenue, for example the joint venture with Biotech that enabled him to support research funding. He executed this vision by centralizing control over HR, finance, management policy and by introducing system and board governance to support the aims of the organization.
He implemented a culture where people knew the metric against which they were being measure, they were empowered and given responsibility with an incentive scheme which rewarded performance..
Context
Fundraising is a hard business.
Money came from donors, fundraising activity and government.
Bob Beall was able to create an organization that offered a full service biotech for CF :
The organizational focus was on advancing medical research.
The CFF has contributed to increasing the life expectancy of a CF sufferer from year in 1950 to 37.4 years in 2007.
By maintaining diversification in its investments it has more than 30 potential CF therapies in the CFF’s drug discovery and development pipeline.
Set a clear mission to run the CFF charity like a business for long terms sustainability.

The CFF offered funding for therapeutic development, pharmacy distribution system, a clinical trial network of 125 care centers and a patient information data source able to reduce the risk pharmaceutical companies that invested in CF drug development research.
The CFF offered Biotech funders the ability to dramatically reduce their cost of development and clinical trials.
People
He hired people with Passion.
CF was able to create a culture which empowered people to take responsibility, be accountable, know and have a clear sight of metrics that they were measured against.
He bought in professional to the board to run and manage the FCC, which included parents and adult CF patients.
Introduce weekly Monday meetings, annual firm-wide meetings to improve communication and coordination for field operations.
Created an performance based incentive program
He traveled to local office to talk to the staff and remained in touch
Tasks
Created a Research and Development Program (RDP)
He Centralized the CFF and decided to star running it like a business, which lead to increased efficiency.
He centralized the organization’s, Finance, HR and operating policy and financial decision
He bought in new technology, Finance system, HR system, and management policies and controlled cost.
He consolidated CFF centers.
He constructed a New board and board governance
He set up a Nation teleconference center for the CFF
He focused people on fundraising activity and explicit branding CFF events
Started sharing best practice for fund raising events across the CFF.

He created the Pharmacy Program which created revenues for the CFF. He created payment plans for patients that could not fully fund their medication through insurance of themselves
He leveraged the patient data accumulated at the RDP centers to support and accelerate joint ventures with research and Biotech companies.
He incentivized these companies to achieve and report progress against mile stones in exchange for research funding and share in the future revenues either on a multiple of invested cost or a royalty rights.
He supported the diversified approach so that if one project failed , they did not have two other behind it that were similar.
He introduced metrics as a measure of performance for staff, executives and funded research organizations.
Culture
He created a culture where people were focused on increasing the life expectancy of patients
He was a good leader and let you know that the stakes were high.
He supported people in a human and financial way
He did not micro manage people, he empowered them, gave them flexibility and held them responsible
He expected to work hard and often people did long hours
Weekly communications with the Directors
Best practices (in fund raising events) were shared will all the fund raising team at CF centers.

He created payment plans for patients that could not fully fund their medication through insurance of themselves
Formal Structure
The organization’s structure was a top down
The organization was set up like a business with a board of professionals

The board consisted of people that were parents of CF sufferers and Adult patients, as well as professional with specific skills in investment management and medical research
Centralized IT, HR,
Top executives were paid a base salary and received Performance related bonuses.…...

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